Family Support

Download our Family Survey and
return via email to km@theemarc.org
Family Resource Center

The Family Resource Center offers assistance to parents and other primary care givers in their efforts to provide care in the home and community for a child or an adult with a developmental disability. Access to some services such as respite care or flexible funding requires that the family member live at home and has been approved for supports by the Department of Mental Retardation's (DMR) intake and eligibility process. However, there are many other supports available to families living in the Metro North Area (Everett, Lynnfield, Malden, Medford, Melrose, North Reading, Reading, Stoneham) that do not require a determination of eligibility from DMR. Our philosophy is to do whatever it takes to support families by offering services which are flexible, individualized and family directed. We believe that when people with developmental disabilities and their families can obtain the information necessary they will lead more independent and fulfilling lives.

For more information contact Kerry Mahoney, Director (781) 942-4888x 1-4015 or email km@theemarc.org.

Services and Supports

Information and Referral- Who to call and where to go for help and assistance.

Support Groups- An opportunity for families to come together and share common experiences in raising children with special needs. Current groups offered are Support for Seniors for the older caregiver; Sibshops for brothers and sisters ages 7-12, Coffee Connection- monthly support for parents raising children with special needs under the age of ten.

Educational Programs Our FRIENDS series (Family, Resource, Information, Exchange, for Disability Solutions) offers workshops on a variety of topics parenting, services and supports available, advocacy and opportunities for networking. In conjunction with Barnes and Noble Booksellers, Saugus we offer a Special Friends Story Time in the Children's Room. Kids from the community learn about differences and similarities too! Click here for our current FRIENDS calendar.

For families raising children:

Special Education Advocacy- Fee for service advocates can assist you in understanding special education laws and how they can benefit your child. Services include consultation, team meetings, record reviews, and negotiations.

Parent Support Groups-

Coffee Connections meets monthly to discuss the trials and tribulations in raising children with special needs. Topics discussed are parenting, family issues, education and obtaining services.

Sibshops- A recreationally based program for school-aged brothers and sisters ages 7-12 meets during school vacation weeks in the Reading area. Sibshops provide siblings for opportunities for peer support. Because Sibshops are designed for school aged children, peer support is provided within a lively, recreational context that emphasizes a kids point of view.

The Successful Parenting program- This program is designed to meet the needs of parents with cognitive limitations. Through a parent aide program; parent education groups and case management, families work to establish a safe and stable home in which to raise their children. This program is funded by the Department of Social Services and the Children's Trust Fund.

And for children eligible for DMR services

Respite Care: Respite providers can offer flexible care and companionship that aid in meeting individual familys needs. The Family Resource Center maintains a listing of providers that can be matched with families.

Flexible Funding: Enables families to choose the support necessary to keep their children at home. Families may purchase goods and services or hire their own caregivers to give themselves a much-needed break.

Building Community Bridges: Using a broker model, this program helps families with children ages 3-10 develop and implement an individualized support plan. The program provides information to strengthen familys knowledge of support services available within their own communities and aids them in accessing those supports. Referrals are open, but the child must be eligible for DMR services.

Intensive Flexible Family Support (IFFS): This program offers families whose children are at risk for residential placement, case management and support to enable them to care for their children at home. This is a family-directed program and services may include, but are not limited to: respite, behavioral consultation, educational advocacy, help in accessing other social support programs and flexible funding. Families are referred to the program by their local DMR Childrens Service Coordinator.

DOE/DMR Agreement: This is a joint program run through the Department of Education and the Department of Mental Retardation. The purpose of the program is to enable families to bring back home a child in a residential placement, or to prevent an imminent residential placement from occurring. Services may include case management, respite, behavioral intervention and in-home training, home modifications and other individualized services that a family deems necessary to maintain their child at home. Referrals to this program are made through DMR and/or your local school system.

Link to web sites

Arc Massachusetts- www.arcmass.org

Mass Families Organizing for Change- Works to inform and educate individuals and families about advocacy, services and resources for individuals with disabilities. www.communitygateway.org/mfofc/

Mass Disability Resource Exchange- A forum for Mass families to share resources and ideas with others who are raising children with disabilities. www.madisabilityexchange.org

Mass Network of Information Providers (MNIP) Free information about disabilities, Mass programs, services and providers. www.disabilityinfo.org

Federation for Children with Special Needs- www.fcsn.org

MASSPAC- Mass Parent Advisory Council- Statewide network of Special education Parent Advisory Councils. www.masspac.org

NICHY- National Information Center of Children and Youth with Disabilities- Provides information on disabilities and disability related issues. Information in Spanish and English. www.nichcy.org

ERIC- Educational Resources Information Center- gathers information and resources about the education and development of individuals who have disabilities www.ericec.org

The Beach Center on Family and Disability- Research briefs, plus a wide range of publications and fact sheets on family issues. www.beachcenter.org

Learning Disabilities- Information and resources for people who have learning disabilities and their families. www.ldonline.org

Sibling Support Project- A national program dedicated to supporting brothers and sisters of people with special health and developmental needs. www.thearc.org/sibling support

Family Ties- An information and support network run by and for parents of children with special needs. Offers information and referral, parent to parent and general support. www.massfamilyties.org

Aspergers Association of New England (ANNE) Provides information, support for parents of children with Aspergers. www.anne.org

Autism Support Center- Information and support for families of people with autism www.nsarc.org

Mass Down Syndrome Congress(MDSC) Statewide parent organization. www.mdsc.org

Department of Education- Oversees the public education of all children in MA www.doe.mass.edu/

Department of Mental Retardation- Provides an array of services to people of all ages with mental retardation and to children with developmental disabilities www.dmr.state.ma.us

Department of Public Health -Oversees the health care system of Mass www.state.ma.us/dph

Division of Medical Assistance- Runs the MassHealth Program www.state.ma.us/dma

Mass Dental Society- Dental referral service for children with special needs www.massdental.org

For families supporting an Adult with Mental Retardation:

Support Groups

Senior Support- Caregivers over the age of 65 meet monthly to discuss issues such as future planning, services and were to find support.

Adult Sibling- Special events are held throughout the year tailored to the needs of adult siblings. These events provide opportunities for adult siblings to learn more about services and supports available as well as discuss common concerns and experiences and how to advocate for their brothers and sisters.

Self-Advocacy- Opportunities for adults with mental retardation to learn how to advocate for themselves.

Family to Family Support Center: Part of a statewide collaboration supporting individuals on the Boulet Settlement and others who wish to plan for their childs future. Provides information on best practices and innovative solutions for families interested in planning for the future; opportunities for networking; educational forums on housing issues, legal and financial planning, etc.; person-centered planning; and assistance in implementing future plans.

Adult Advocacy: Individualized assistance and consultation in accessing and navigating government benefit programs and services supporting adults with mental retardation.

And for adults living with a caregiver who are eligible for DMR supports-

Respite Care-Respite providers can offer flexible care and companionship that aid in meeting individual familys needs. The Family Resource Center maintains a listing of providers that can be matched with families.

Family Partnerships- When private funds from families and others are combined with public funds from DMR or other state/local agencies to develop a housing solution. EMARC assists families in developing comprehensive plans and provide or arrange for support services. Families and individuals direct the supports necessary.

Links to web sites